What We Do: Education & Awareness
We strive to bring awareness to pediatric cancer and act as a voice for families of children with cancer.
There tends to be very little awareness about pediatric cancer among the general public. When the majority of people in the world know what a gold ribbon stands for, our job will be done.
This list of websites will help you in your search for answers to questions about pediatric cancer.
Habitat for Hope
www.habitatforhope.org
Offers support to families on a holistic level who are dealing with pediatric cancer or other life-threatening illnesses. If you are fortunate to be in the Memphis, TN area, you can take advantage of what they have to offer. If you live outside of Tennessee, Habitat for Hope does have volunteers in different areas of the country.
Candle Lighters
www.candlelighters.org
Candle Lighters provides educational support and fun activities,
Lots a Helping Hands
www.lotsahelpinghands.com
Coordinate meals, organize rides to medical appointments, manages logistical tasks that come with caregiving, and provides medical status updates.
Care Pages and CaringBridge
www.carepages.com and www.caringbridge.org
Do not ask the parents to call you to give you updates on the status of their child. During this time, the parents need time with their child and should not feel obligated to make phone calls. It is okay to recommend that a family member start a carepage as a less time consuming way to update friends and family.
Pediatric Brain Tumor Foundation
www.pbtfus.org
The Pediatric Brain Tumor Foundation offers educational and emotional support to families affected by brain tumors.
American Brain Tumor Association
www.abta.org
An area on their site is devoted to the topic of pediatric brain tumors. This site is great for adults as well the child.
CureSearch
www.curesearch.org or Spanish site www.curesearch.org/spanish
Consists of the Children's Oncology Group and the National Childhood Cancer Foundation. Together they form the world's largest childhood cancer research organization. This site offers information on different types of cancer and categorizes it into topics of Newly Diagnosed, In Treatment, End of Treatment and After Treatment. This site also offers statistical information, latest research findings and allows you to search for clinical trials.
Alive Alone
www.alivealone.org
An organiztion that benefits bereaved parents whose only child or all children are deceased.
Hats-N-Hair from Kids Who Care
Started by a special young lady who is a cancer survivor and St. Jude patient. Your child can receive a hat with a pony-tail attached or just a hat (for a boy) free of charge. Email fromkidswhocare@yahoo.com or call 559-972-8030.
Locks of Love
www.locksoflove.org
Provides hairpieces free of charge or on a sliding scale, based on financial need. If you are ready to cut off at least 10 inches of your own hair, you can donate it to Locks of Love.
CANCERVIVE
www.cancervive.org
Provides support, education and advocacy to those who have survived pediatric cancer.
St. Jude Children's Research Hospital
www.stjude.org
A great resource for all types of pediatric cancer. All patients accepted for treatment at St. Jude are treated without regard to the family's ability to pay. They were recently ranked the No. 1 pediatric cancer care hospital in the country by Parents magazine.
Songs of Love
www.songsoflove.org
Creates personalized one of-a-kind songs for sick children free of charge. An amazing organization!
Flashes of Hope
www.flashesofhope.org
A non-profit organization dedicated to creating uplifting portraits of children fighting cancer and other life threatening illnesses. The portraits, taken by award-winning photographers, help children feel better about their changing appearance by celebrating it. For families of terminally ill children, it's especially important to have a portrait that forever preserves the beauty, grace and dignity of their child.
The Leukemia and Lymphoma Society
www.leukemia-lymphoma.org
The Leukemia and Lymphoma Society (LLS) is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. There is a section devoted to childhood blood cancers.
The National Cancer Institute
www.cancer.gov
For searching clinical trials, visit www.cancer.gov/clinicaltrials
A helpful site to visit for information on different cancer topics, clinical trials, cancer statistics and research.
People Against Childhood Cancer
www.curechildhoodcancer.ning.com
A community of parents and people touched by pediatric cancer who are working together to form one voice to raise awareness of childhood cancer.